Storyteller: Hallie Munro
Extraordinary Circumstance: Heterotaxy and Primary Ciliary Dyskinesia
Book: (needs Troop; needs funding)
Design & Illustrations by
HALLIE MUNRO is a beautiful, vivacious, girl full of spunk and sass. She loves to draw and create. She loves fashion and wants to learn how to sew so that she can create her own designs. She loves to be outdoors and play with her friends. Unfortunately, unlike other kids her age, Hallie spends a good portion of her life at the doctors and in hospitals. She was born with a condition called Heterotaxy, where none of her organs formed correctly or in the right location. This was caused by another rare condition called Primary Ciliary Dyskinesia, which is in the same family as Cystic Fibrosis. She has many complex birth defects that leave her fighting for her life. It takes a large team to keep Hallie’s body working. She sees GI, nephrology, hematology, urology, orthopedics, neurology, neurosurgery, cardiology, pulmonology, rheumatology, immunology, surgery, psychiatry, and palliative. Keeping up with Hallie and all of her medical appointments is more than a full time job. She attempts to live as normal of a life as possible, but misses about 60 days of school a year.
Read her book.
Copyright © 2019 by Dallas Graham. All rights reserved. No part of this book may be reproduced in any form by any electronic or mechanical means including photocopying, recording, or information storage and retrieval without permission in writing from the copyright holder.
Heterotaxy and Primary Ciliary Dyskinesia
RED FRED PROJECT WOULD LIKE TO THANK OUR FRIENDS AT PATIENT WORTHY FOR THEIR RESEARCH AND PARTICIPATION IN SHARING THIS VERY IMPORTANT INFORMATION WITH US REGARDING THIS EXTRAORDINARY CIRCUMSTANCE. YOU CAN LEARN MORE ABOUT THEIR WORK AT PATIENTYWORTHY.COM.